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Archive & Timeline

This page holds selected technical and program threads that expand the record without overloading the main hub.

Selected Threads

Working Timeline

Ultragenyx Pharmaceutical

Innovation Lab
Context
Clinical technology and operations organization supporting metabolic and rare-disease programs.
Evidence
Innovation Lab (~54-person team); Phase II–III and Phase IV support; global pivotal Phase III work linked to Dojolvi.
Role
Established and led the Innovation Lab; built the operating capability for product, engineering, QA, and operations.
Rarify and BEYONDXLH
Context
Metabolic-condition platform work and Phase IV longitudinal patient-program execution.
Evidence
Rarify collaborative platform; BEYONDXLH; Crysvita and Dojolvi commercial context; zero-findings audit environment.
Role
Led Rarify platform development; led BEYONDXLH in partnership with Yale School of Medicine and the XLH Network.

PatientStories.ai

Narrative-to-signal platform
Context
Patient-centered engagement and insight platform focused on unstructured experience and longitudinal signal.
Evidence
Current platform design work, stakeholder testing, GLP-1 cohort thinking, and between-visit patient journey modeling.
Role
Founder and designer; developing the platform model, signal logic, and cohort architecture.
GLP-1 and patient journey logic
Context
Patient journeys involving consideration, initiation, persistence, discontinuation, and hidden motivation.
Evidence
Considering / on it / stopped segmentation; hidden motivation and behavior-adjacent use patterns; persistence-focused design.
Role
Designed the cohort logic and patient-experience framework for a GLP-1-oriented learning system.

Timeline

PeriodProgram / PlatformContextRole
2019–2024Ultragenyx PharmaceuticalClinical technology, metabolic programs, rare disease, Rarify, BEYONDXLH, Dojolvi-linked Phase III supportBuilt and led Innovation Lab (~54); led platform and program work
2024–PresentPatientStories.aiNarrative-to-signal platform; GLP-1 cohort concept; between-visit patient experienceFounder and designer