Experience at several levels
Kevin’s work combines a personal origin in family diabetes care with professional experience building products, operating programs, conducting research, and collaborating with patient communities. The professional contribution is the translation of lived experience into requirements and operating decisions.
The record includes pediatric diabetes, adult chronic-care programs, family and social support, community-health engagement, and rare-disease research. Different groups required different engagement and collaboration models.
Sponsor-side co-design
At Ultragenyx, Kevin’s career materials describe collaboration with patient advocacy organizations and paid patient-community consultants under legal and compliance oversight. The purpose was to incorporate real-world needs and behaviors into clinical workflows and digital experiences.
BEYONDXLH involved the XLH Network and Yale in a longitudinal monitoring program. Kevin’s responsibilities connected study design, patient-reported information, program improvements, and study-manager mentoring.
Value to product and program teams
Patient input becomes valuable when it changes a decision: the burden of a collection task, the clarity of a message, the timing of feedback, the availability of support, or the way a clinical workflow is presented. Kevin’s experience connects those decisions to teams capable of implementing and maintaining them.
The record documents repeated collaboration across the groups needed to make healthcare products and research usable.
Sources and record basis
- Conference abstractClinical Medicine & Research · 2010 journal issue and pilot abstract
Contains the Diabetes Social Support Feasibility Pilot Study abstract, including Kevin McMahon in the author group. The link opens the journal issue.
- Published workSugar Surfing · Author and book resource
The patient-education work co-authored by Stephen W. Ponder and Kevin L. McMahon and published by MediSelf Press.